Hartiah Haroen, Neti Juniarti, Citra Windani Mambang Sari, Sheizi Prista Sari, Novita Intan Arovah, Jerico Franciscus Pardosi, Daniel Akbar Wibowo
Background: Caregivers of patients with palliative and chronic conditions often experience complex physical, emotional, and social burdens. These burdens impact not only their well-being but also the continuity and quality of care provided. Purpose: This study aimed to identify the level of caregiver burden and factors associated with it in families caring for members with palliative conditions and chronic illnesses. Patients and Methods: A cross-sectional study of 71 caregivers was conducted using convenience sampling. Data were collected using the FATCOD-B, knowledge toward palliative care, and Zarit Burden Interview (ZBI). Data were analyzed using the Rasch model and bivariate tests. Results: A high burden was reported by 50.7% of caregivers, while 39.4% and 9.9% experienced moderate and low burden, respectively. The variables of marital status, length of care, the availability of health insurance, and caregiver attitude showed a significant relationship to caregiver burden (p<0.05). Rasch’s analysis revealed that perceived loss of privacy was the statement with the lowest level of agreement. At the same time, feelings of not being optimal enough in providing care were the statement most frequently acknowledged by caregivers. Conclusion: Psychosocial and structural factors influence caregiver burden. These findings highlight the need for integrated interventions, including psychosocial support, financial security, and caregiver education, to mitigate burden in this population. © 2025 Haroen et al.
Faculty of Nursing, Universitas Padjadjaran, Jl. Raya Ir. Soekarno KM. 21, Hegarmanah, JatinangorWest Java, Sumedang, 45363, Indonesia; Department of Medicine, Faculty of Medicine, Universitas Negeri Yogyakarta, Central Jawa, Depok, Indonesia; School of Public Health and Social Work, Faculty of Health, Queensland University of Technology, Brisbane, Australia; Bachelor Nursing Program, Faculty of Health Science, Galuh University, West Java, Ciamis, Indonesia
